We received the news on April 14th, 2009 that Sienna is a Cochlear Implant candidate. We still have a few more tests to do to make it official. She needs a CT Scan, booked for May 30th and she needs to meet with a few more specialist before we can make our decision whether this is what we want for Sienna.
We are researching as much as we can, to find out about the risks, the pros and the cons. It is not easy when this life-altering decision for our girl is placed in our hands. All I have to say is thank goodness for the Internet. I have found all sorts of information through websites, forums and blogs. I would like to thank all of you out there for sharing your stories, your trials and tribulations in regards to your child's hearing loss and cochlear implant. You have helped us out enormously, being from a small town, it is sure comforting to know that we are not alone in this process and that there is hope for our little girl to hear one day.
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Jenny great job on the site, it is very informative and positive. You are right Sienna is very special she makes me laugh all the time with her cooky ways, i hope Dezlyn is like her!! Hang in there, i am always here for you, always.. (tear,tear!)
ReplyDeleteHi Jenny,
ReplyDeleteWhat sweet beautiful little ones you have! I thought you'd like to know about 2 other blogs that are about cmv babies with hearing loss.
Little Emma is here:
http://howlifehappens.blogspot.com/
and Danny is here:
http://quietsong.net/
Have you found Ci Circle on Yahoo yet? It's a wonderful group of parents with Ci children; just searching the archived messages on that group has been enormously helpful to us over the years. It might help you get a better sense of it all, I know it's pretty overwhelming.
Feel free to email me anytime too.
-Heather (Ethan's mommy)
Hi Jenny,
ReplyDeleteYour girls are beautiful! I got chills reading through this post as I very well remember the newness of the hearing loss world. The first time we ever heard of "profound hearing loss" and "cochlear implants" was just a bit over a year ago, and now it's a part of our everyday life. If you ever have any questions, feel free to email me! I'm so glad you found the resources you have, these moms out here were my saving grace!
Hugs to you,
Tammy (Aiden's mommy)